Abstract：
Individuals who require home enteral nutrition (EN)-and, subsequently, their families-undergo major changes in family dynamics. They would benefit from an approach that provides ongoing nutrition, hydration, enteral access, and quality of life assessments from knowledgeable clinicians. Most individuals and families will be new to the enteral access device, handling and administration of the nutrition formula, medication delivery through feeding tubes, and troubleshooting associated complications. Educational sessions are typically given but may not be comprehensive enough to meet all needs, especially in the first weeks to months of home EN therapy. Quality of life assessments obtained in the early stages of EN support would help clinicians identify and focus on areas that need special attention for that individual and family. Ongoing clinical care is essential because over time, the nutrition prescription, delivery methods and schedules typically require alterations and feeding tubes need to be assessed and replaced. In addition to these important physical dimensions of care, attention should be placed on the psychological, cognitive, social, and ethical aspects of life for these individuals and their families.
摘要：
需要家庭肠内营养(EN)的个人-和，随后,他们的家庭经历了家庭动态的重大变化。他们将受益于提供持续营养的方法，水合作用,肠内通路,以及知识渊博的临床医生的生活质量评估。大多数个人和家庭将是新的肠内进入设备，营养配方的处理和管理，通过饲管输送药物，和故障排除相关的并发症。通常会提供教育课程，但可能不够全面，无法满足所有需求，尤其是在最初几周到几个月的家庭EN治疗。在EN支持的早期阶段获得的生活质量评估将帮助临床医生确定并关注需要对个人和家庭特别关注的领域。持续的临床护理至关重要，因为随着时间的推移，营养处方,交付方法和时间表通常需要更改，并且需要评估和更换饲管。除了这些重要的身体护理方面，应该把注意力放在心理上，认知，社会,以及这些个人及其家人生活的道德方面。
