Abstract:
Effective stakeholder engagement increases research relevance and utility. Though published principles of community-based participatory research and patient-centered outcomes research offer guidance, few resources offer effective techniques to engage stakeholders and translate their engagement into improvements in research process and outcomes. The Indiana Clinical and Translational Sciences Institute (Indiana CTSI) is home to Research Jam (RJ), an interdisciplinary team of researchers, project management professionals, and design experts, that employs human-centered design (HCD) to engage stakeholders in the research process. Establishing HCD services at the Indiana CTSI has allowed for accessible and innovative stakeholder-engaged research. RJ offers services for stakeholder-informed study design, measurement, implementation, and dissemination. RJ\'s services are in demand to address research barriers pertaining to a diverse array of health topics and stakeholder groups. As a result, the RJ team has grown significantly with both institutional and extramural support. Researchers involved in RJ projects report that working with RJ helped them learn how to better engage with stakeholders in research and changed the way they approach working with stakeholders. RJ can serve as a potential model for effectively engaging stakeholders through HCD to improve translational research.
摘要:
有效的利益相关者参与增加了研究的相关性和实用性。尽管已发布的基于社区的参与式研究和以患者为中心的结果研究的原则提供了指导,很少有资源提供有效的技术来吸引利益相关者,并将他们的参与转化为研究过程和结果的改进。印第安纳州临床与转化科学研究所(印第安纳州CTSI)是研究果酱(RJ)的所在地,一个跨学科的研究团队,项目管理专业人员,和设计专家,采用以人为本的设计(HCD)让利益相关者参与研究过程。在印第安纳州CTSI建立HCD服务允许进行可访问和创新的利益相关者参与的研究。RJ为利益相关者知情的研究设计提供服务,测量,实施,和传播。RJ的服务需要解决与各种健康主题和利益相关者团体有关的研究障碍。因此,RJ团队在机构和校外支持下取得了显着增长。参与RJ项目的研究人员报告说,与RJ合作帮助他们学习如何更好地与利益相关者进行研究,并改变了他们与利益相关者合作的方式。RJ可以作为通过HCD有效吸引利益相关者以改善转化研究的潜在模型。