Abstract：
Kidney stone disease (KSD) is a common, complex and painful urological condition, but how patients make sense of and respond to the challenges of KSD is poorly understood. Using the common-sense model of illness self-regulation (CSM-SR), we aimed to explore the illness experiences of individuals with KSD.
A qualitative design using individual semi-structured interviews.
Thirty-three patients with KSD attending outpatient urology services participated in interviews informed by the CSM-SR. Data were analysed using reflexive thematic analysis. Themes were mapped onto the domains of the CSM-SR.
Five main themes were generated, broadly echoing domains within the CSM-SR: (1) making sense of KSD, (2) normality paused, (3) the psychological burden of KSD, (4) the tensions of managing KSD, and (5) improving understanding of KSD. Additionally, findings suggested that partners\' perceptions of KSD were an additional contextual factor that informed patients\' own perceptions and management of KSD. Participants appraised initial KSD symptoms as indicative of a serious health threat. Diagnosis brought some relief, however, KSD wielded multi-dimensional impacts on patients\' perceptions, self-management and well-being. Anxiety, including fear of KSD recurrence, and low mood were common psychological burdens across narratives.
The majority of the themes identified were commensurate with an extended CSM-SR. This model has utility in informing how patients perceive and manage KSD. Examining patients\' KSD representations and routinely assessing for psychological distress may be of benefit to improve health outcomes for this patient group.
A qualitative design using individual semi-structured interviews.
Thirty-three patients with KSD attending outpatient urology services participated in interviews informed by the CSM-SR. Data were analysed using reflexive thematic analysis. Themes were mapped onto the domains of the CSM-SR.
Five main themes were generated, broadly echoing domains within the CSM-SR: (1) making sense of KSD, (2) normality paused, (3) the psychological burden of KSD, (4) the tensions of managing KSD, and (5) improving understanding of KSD. Additionally, findings suggested that partners\' perceptions of KSD were an additional contextual factor that informed patients\' own perceptions and management of KSD. Participants appraised initial KSD symptoms as indicative of a serious health threat. Diagnosis brought some relief, however, KSD wielded multi-dimensional impacts on patients\' perceptions, self-management and well-being. Anxiety, including fear of KSD recurrence, and low mood were common psychological burdens across narratives.
The majority of the themes identified were commensurate with an extended CSM-SR. This model has utility in informing how patients perceive and manage KSD. Examining patients\' KSD representations and routinely assessing for psychological distress may be of benefit to improve health outcomes for this patient group.
摘要：
目的：肾结石病（KSD）是一种常见的，复杂而痛苦的泌尿系统疾病，但是患者如何理解和应对KSD的挑战却知之甚少。使用疾病自我调节的常识模型(CSM-SR)，我们旨在探讨KSD患者的患病经历。
方法：使用个人半结构化访谈的定性设计。
方法：33名参加门诊泌尿外科服务的KSD患者参加了由CSM-SR告知的访谈。使用反身性主题分析对数据进行了分析。将主题映射到CSM-SR的域上。
结果：产生了五个主要主题，广泛呼应CSM-SR内的域：(1)理解KSD，(2)正态暂停,(3)KSD的心理负担,(4)管理KSD的紧张局势，(5)提高对KSD的认识。此外,研究结果表明，伴侣对KSD的看法是一个额外的背景因素，可以告知患者对KSD的看法和管理。参与者认为最初的KSD症状表明存在严重的健康威胁。诊断带来了一些缓解，然而,KSD对患者的感知产生了多维影响，自我管理和幸福。焦虑,包括对KSD复发的恐惧，情绪低落是叙事中常见的心理负担。
结论：确定的大多数主题与扩展的CSM-SR相称。该模型在告知患者如何感知和管理KSD方面具有实用性。检查患者的KSD表现并常规评估心理困扰可能有助于改善该患者组的健康结果。
方法：使用个人半结构化访谈的定性设计。
方法：33名参加门诊泌尿外科服务的KSD患者参加了由CSM-SR告知的访谈。
结果：产生了五个主要主题，
结论：确定的大多数主题与扩展的CSM-SR相称。
