Abstract：
This study provides insight into circumstances that facilitate or hamper living at home with advanced dementia until the end of life. Interviews were held with 11 bereaved family caregivers, two general practitioners, and nine case managers, related to a total of 12 persons with advanced dementia who had recently died. Persons with dementia who lived at home until the end of life often had family caregivers that received timely support from professionals and their social network. In the cases where the person with dementia could not live at home until the end of life, safety issues, severely challenging behavior, and high care dependency of the person with dementia played key roles. Case management and a continuous process of advance care planning will improve the chance that the end-of-life setting is in accordance with the key values and needs of both the person with dementia and family caregivers.
摘要：
这项研究提供了深入了解促进或阻碍晚期痴呆症患者在家中生活直至生命终结的情况。采访了11名失去亲人的家庭照顾者，两名全科医生，和九个案件经理，与最近死亡的12名晚期痴呆症患者有关。住在家里直到生命结束的痴呆症患者通常有家庭照顾者，他们得到了专业人士和他们的社交网络的及时支持。在痴呆症患者直到生命终结才能在家中生活的情况下，安全问题,具有严重挑战性的行为，痴呆症患者的高度护理依赖性发挥了关键作用。病例管理和持续的提前护理计划过程将提高临终环境符合痴呆症患者和家庭护理人员的关键价值观和需求的机会。
