PDF(Pubmed)
Abstract：
BACKGROUND: Patients with multiple sclerosis (MS) were vulnerable to the effects of physical inactivity during the COVID-19 pandemic. As patients returned to in-person visits, providers reported seeing increased weakness, balance issues, falls, worsening pain, and spasticity. Social isolation also contributed to increased stress, depression, and anxiety. This study explored whether attending virtual wellness programs was associated with improvements in standard quality of life questionnaire scores for patients with MS.
METHODS: The purposive convenience sample consisted of 43 patients in the treatment group and 28 in the control group. Patients in the treatment group attended 2 monthly programs for 6 months and completed a demographic questionnaire, the 36-Item Short Form Health Survey (SF-36), the Modified Fatigue Impact Scale, and the Medical Outcomes Study Pain Effects Scale (PES). Patients requested additional topics, resulting in 5 additional programs. The control group consisted of patients who chose not to attend the programs but agreed to complete the questionnaires.
RESULTS: In comparing questionnaire responses (6 months minus baseline) among the participants in the treatment group, an association was found between higher meeting attendance and improvements in emotional well-being (P = .038), pain on the PES (P = .011), mindfulness on the SF-36 pain scale (P = .0472), and exercise on the PES (P = .0115).
CONCLUSIONS: The results of this study suggest that a virtual wellness program may provide beneficial emotional support, physical exercise, and health promotion activities resulting in improved quality of life in people with MS. In addition, mindfulness and exercise programs may be beneficial in pain management.
METHODS: The purposive convenience sample consisted of 43 patients in the treatment group and 28 in the control group. Patients in the treatment group attended 2 monthly programs for 6 months and completed a demographic questionnaire, the 36-Item Short Form Health Survey (SF-36), the Modified Fatigue Impact Scale, and the Medical Outcomes Study Pain Effects Scale (PES). Patients requested additional topics, resulting in 5 additional programs. The control group consisted of patients who chose not to attend the programs but agreed to complete the questionnaires.
RESULTS: In comparing questionnaire responses (6 months minus baseline) among the participants in the treatment group, an association was found between higher meeting attendance and improvements in emotional well-being (P = .038), pain on the PES (P = .011), mindfulness on the SF-36 pain scale (P = .0472), and exercise on the PES (P = .0115).
CONCLUSIONS: The results of this study suggest that a virtual wellness program may provide beneficial emotional support, physical exercise, and health promotion activities resulting in improved quality of life in people with MS. In addition, mindfulness and exercise programs may be beneficial in pain management.
摘要：
背景：在COVID-19大流行期间，多发性硬化症（MS）患者容易受到身体活动不足的影响。当病人回到现场时，供应商报告说看到越来越多的弱点，平衡问题，falls,疼痛加重,和痉挛。社会孤立也加剧了压力，抑郁症,和焦虑。这项研究探讨了参加虚拟健康计划是否与MS患者标准生活质量问卷得分的改善有关。
方法：目的便利样本包括治疗组43例患者和对照组28例患者。治疗组患者参加了为期6个月的2个月计划，并完成了人口统计问卷，36项简式健康调查(SF-36)，修改后的疲劳冲击量表，和医学结果研究疼痛影响量表(PES)。患者要求更多的主题，产生5个额外的方案。对照组由选择不参加该计划但同意完成问卷的患者组成。
结果：在比较治疗组参与者的问卷答复（6个月减去基线）时，发现较高的会议出勤率与改善情绪幸福感之间存在关联（P=.038），PES疼痛（P=.011），SF-36疼痛量表（P=.0472），并在PES上进行锻炼(P=.0115)。
结论：这项研究的结果表明，虚拟健康计划可能会提供有益的情感支持，体育锻炼,和健康促进活动，提高了MS患者的生活质量。此外,正念和锻炼计划可能对疼痛管理有益。
方法：目的便利样本包括治疗组43例患者和对照组28例患者。治疗组患者参加了为期6个月的2个月计划，并完成了人口统计问卷，36项简式健康调查(SF-36)，修改后的疲劳冲击量表，和医学结果研究疼痛影响量表(PES)。患者要求更多的主题，产生5个额外的方案。对照组由选择不参加该计划但同意完成问卷的患者组成。
结果：在比较治疗组参与者的问卷答复（6个月减去基线）时，发现较高的会议出勤率与改善情绪幸福感之间存在关联（P=.038），PES疼痛（P=.011），SF-36疼痛量表（P=.0472），并在PES上进行锻炼(P=.0115)。
结论：这项研究的结果表明，虚拟健康计划可能会提供有益的情感支持，体育锻炼,和健康促进活动，提高了MS患者的生活质量。此外,正念和锻炼计划可能对疼痛管理有益。
