PDF(Pubmed)
Abstract：
UNASSIGNED: Experiencing bereavement may be challenging. Despite the oldest-old population increase, a subgroup at greater risk of death, few studies focus on the grieving process of informal caregivers (ICs). This study analyzed the transition to bereavement of ICs of oldest-old individuals (≥80 years) over 1-year and compares the evolution of the health-related quality of life (HrQoL) between those experiencing bereavement and those who continued care through the study period.
UNASSIGNED: A prospective longitudinal observational study was conducted enrolling 204 ICs of the Metropolitan Area of Porto (North Portugal), of which 36 experienced the death of care receiver (CR). ICs\' health profile and burden were assessed. CRs\' functional and cognitive status were also appraised.
UNASSIGNED: Bereaving caregivers were mostly female, CRs\' children, and had on average 60.4 years at baseline. Caregivers spent a mean of 10.1 h/day (SD = 7.7) caring, for 80.6 months (SD = 57.5). The time elapsed since CR\'s death was 6 months (SD = 3.5) from entering in the study. CRs who died had a mean age of 88.3 (SD = 5.4) years at baseline, and were very dependent. Over a 1-year follow-up, bereaving caregivers showed a significant decrease in mental health following CR\'s death; on the other hand, caregivers who continued caring improved mental health [F(1, 159) = 4.249, p = 0.041].
UNASSIGNED: Ending the caregiver career was marked by a decline in mental health whereas to continue caring was marked by an improvement in this outcome. While it is highly expected that the CR\'s death will be perceived as a relief considering both the caregiver\'s characteristics (e.g., medicines) and the CR condition (e.g., high dependence levels), the results suggest an opposite direction. CRs\' death seems to arise an emotional burden for IC, at least during the first year, possibly triggering feelings of loneliness and a life without purpose that seems to aggravate mental health issues.
UNASSIGNED: The transition to bereavement among ICs seems to lead to a caregiver mental health decline while those who continued caring (and thereby, experiencing caregiving stressors) seems to improve in this outcome. Ceasing caregiving stressors does not seem to contribute better experiencing bereavement among ICs, suggesting the need for support throughout this phase.
UNASSIGNED: A prospective longitudinal observational study was conducted enrolling 204 ICs of the Metropolitan Area of Porto (North Portugal), of which 36 experienced the death of care receiver (CR). ICs\' health profile and burden were assessed. CRs\' functional and cognitive status were also appraised.
UNASSIGNED: Bereaving caregivers were mostly female, CRs\' children, and had on average 60.4 years at baseline. Caregivers spent a mean of 10.1 h/day (SD = 7.7) caring, for 80.6 months (SD = 57.5). The time elapsed since CR\'s death was 6 months (SD = 3.5) from entering in the study. CRs who died had a mean age of 88.3 (SD = 5.4) years at baseline, and were very dependent. Over a 1-year follow-up, bereaving caregivers showed a significant decrease in mental health following CR\'s death; on the other hand, caregivers who continued caring improved mental health [F(1, 159) = 4.249, p = 0.041].
UNASSIGNED: Ending the caregiver career was marked by a decline in mental health whereas to continue caring was marked by an improvement in this outcome. While it is highly expected that the CR\'s death will be perceived as a relief considering both the caregiver\'s characteristics (e.g., medicines) and the CR condition (e.g., high dependence levels), the results suggest an opposite direction. CRs\' death seems to arise an emotional burden for IC, at least during the first year, possibly triggering feelings of loneliness and a life without purpose that seems to aggravate mental health issues.
UNASSIGNED: The transition to bereavement among ICs seems to lead to a caregiver mental health decline while those who continued caring (and thereby, experiencing caregiving stressors) seems to improve in this outcome. Ceasing caregiving stressors does not seem to contribute better experiencing bereavement among ICs, suggesting the need for support throughout this phase.
摘要：
未经评估：经历丧亲可能具有挑战性。尽管年龄最大的人口增加，死亡风险更大的亚组，很少有研究关注非正式护理人员(IC)的悲伤过程。这项研究分析了年龄最大的人（≥80岁）在1年内向丧亲的IC过渡，并比较了丧亲者和在整个研究期间继续护理者之间与健康相关的生活质量（HrQoL）的演变。
UNASSIGNED：进行了一项前瞻性纵向观测研究，纳入了波尔图（北葡萄牙）大都市区的204个IC，其中36人经历了护理接受者(CR)的死亡。评估了IC的健康状况和负担。还评估了CRs的功能和认知状态。
未经评估：留下的照顾者大多是女性，CRs\'儿童，基线时平均为60.4年。护理人员平均每天花费10.1小时(SD=7.7)护理，80.6个月（SD=57.5）。自CR死亡以来的时间为进入研究后6个月(SD=3.5)。死亡的CRs在基线时的平均年龄为88.3(SD=5.4)岁，并且非常依赖。经过1年的随访，失去家属的照顾者在CR死亡后的心理健康显着下降；另一方面，继续照顾的护理人员改善了心理健康[F(1,159)=4.249，p=0.041]。
UNASSIGNED：结束照顾者的职业生涯以心理健康下降为标志，而继续照顾则以改善这一结果为标志。虽然高度预期CR的死亡将被视为一种解脱，同时考虑到照顾者的特征(例如，药物)和CR状况(例如，高依赖水平)，结果表明方向相反。CRs\'死亡似乎给IC带来了情感负担，至少在第一年，可能会引发孤独感和没有目的的生活，这似乎会加剧心理健康问题。
UNASSIGNED：IC之间向丧亲的过渡似乎导致照顾者的心理健康下降，而那些继续照顾（从而，经历护理压力源)似乎在这个结果上有所改善。停止护理压力源似乎并不能更好地促进IC中的丧亲之痛，建议在整个阶段都需要支持。
UNASSIGNED：进行了一项前瞻性纵向观测研究，纳入了波尔图（北葡萄牙）大都市区的204个IC，其中36人经历了护理接受者(CR)的死亡。评估了IC的健康状况和负担。还评估了CRs的功能和认知状态。
未经评估：留下的照顾者大多是女性，CRs\'儿童，基线时平均为60.4年。护理人员平均每天花费10.1小时(SD=7.7)护理，80.6个月（SD=57.5）。自CR死亡以来的时间为进入研究后6个月(SD=3.5)。死亡的CRs在基线时的平均年龄为88.3(SD=5.4)岁，并且非常依赖。经过1年的随访，失去家属的照顾者在CR死亡后的心理健康显着下降；另一方面，继续照顾的护理人员改善了心理健康[F(1,159)=4.249，p=0.041]。
UNASSIGNED：结束照顾者的职业生涯以心理健康下降为标志，而继续照顾则以改善这一结果为标志。虽然高度预期CR的死亡将被视为一种解脱，同时考虑到照顾者的特征(例如，药物)和CR状况(例如，高依赖水平)，结果表明方向相反。CRs\'死亡似乎给IC带来了情感负担，至少在第一年，可能会引发孤独感和没有目的的生活，这似乎会加剧心理健康问题。
UNASSIGNED：IC之间向丧亲的过渡似乎导致照顾者的心理健康下降，而那些继续照顾（从而，经历护理压力源)似乎在这个结果上有所改善。停止护理压力源似乎并不能更好地促进IC中的丧亲之痛，建议在整个阶段都需要支持。
