Abstract：
Sickle cell disease (SCD) is a hemoglobinopathy that causes debilitating pain. Patients often report dissatisfaction during care seeking for pain or a sickle cell crisis (SCC). The Theory of Self-Care Management for SCD conceptualizes assertive communication as a self-care management resource that improves healthcare outcomes.
This pilot study aimed to determine whether adults with SCD could learn to use the Situation, Background, Assessment, Recommendation (SBAR) communication method using a web-based trainer, and it aimed to determine their perceptions of the training.
The participants included n = 18 adults with SCD. Inter-rater reliability (IRR) among three reviewers was used to evaluate the participants\' ability to respond as expected to prompts using SBAR communication within the web-based platform. Content analysis was used to describe the participants\' perspectives of the acceptability of using the SBAR patient-HCP communication simulation.
The SBAR IRR ranged from 64 to 94%, with 72% to 94% of the responses being evaluated as the using of the SBAR component as expected. The predominant themes identified were (1) Patient-Provider Communication and Interaction; (2) Patients want to be Heard and Believed; (3) Accuracy of the ED Experience and Incorporating the Uniqueness of each Patient; and (4) the Overall Usefulness of the Video Trainer emerging.
This pilot study supported the usefulness and acceptability of a web-based intervention in training adults with SCD to use SBAR to enhance patient-HCP communication. Enhancing communication may mitigate the barriers that individuals with SCD encounter during care seeking and improve the outcomes. Additional studies with larger samples need to be conducted.
This pilot study aimed to determine whether adults with SCD could learn to use the Situation, Background, Assessment, Recommendation (SBAR) communication method using a web-based trainer, and it aimed to determine their perceptions of the training.
The participants included n = 18 adults with SCD. Inter-rater reliability (IRR) among three reviewers was used to evaluate the participants\' ability to respond as expected to prompts using SBAR communication within the web-based platform. Content analysis was used to describe the participants\' perspectives of the acceptability of using the SBAR patient-HCP communication simulation.
The SBAR IRR ranged from 64 to 94%, with 72% to 94% of the responses being evaluated as the using of the SBAR component as expected. The predominant themes identified were (1) Patient-Provider Communication and Interaction; (2) Patients want to be Heard and Believed; (3) Accuracy of the ED Experience and Incorporating the Uniqueness of each Patient; and (4) the Overall Usefulness of the Video Trainer emerging.
This pilot study supported the usefulness and acceptability of a web-based intervention in training adults with SCD to use SBAR to enhance patient-HCP communication. Enhancing communication may mitigate the barriers that individuals with SCD encounter during care seeking and improve the outcomes. Additional studies with larger samples need to be conducted.
摘要：
镰状细胞病（SCD）是一种引起衰弱性疼痛的血红蛋白病。患者在寻求疼痛或镰状细胞危象（SCC）的过程中经常报告不满意。SCD的自我护理管理理论将自信的沟通概念化为改善医疗保健结果的自我护理管理资源。
这项初步研究旨在确定患有SCD的成年人是否可以学习使用这种情况，背景,评估,使用基于网络的培训师的推荐(SBAR)通信方法，它旨在确定他们对培训的看法。
参与者包括n=18名患有SCD的成年人。使用三个审阅者之间的评估者间可靠性（IRR）来评估参与者在基于Web的平台内使用SBAR通信对提示做出预期反应的能力。内容分析用于描述参与者对使用SBAR患者-HCP沟通模拟的可接受性的观点。
SBARIRR范围为64％至94％，72％至94％的响应被评估为使用预期的SBAR组件。确定的主要主题是（1）患者与提供者的交流和互动；（2）患者希望被听到和被相信；（3）ED体验的准确性并纳入每个患者的独特性；（4）视频培训师的整体实用性。
这项初步研究支持了基于网络的干预在训练患有SCD的成年人中使用SBAR来增强患者与HCP的沟通的有效性和可接受性。加强沟通可以减轻SCD患者在寻求护理期间遇到的障碍并改善结果。需要进行更大样本的其他研究。
这项初步研究旨在确定患有SCD的成年人是否可以学习使用这种情况，背景,评估,使用基于网络的培训师的推荐(SBAR)通信方法，它旨在确定他们对培训的看法。
参与者包括n=18名患有SCD的成年人。使用三个审阅者之间的评估者间可靠性（IRR）来评估参与者在基于Web的平台内使用SBAR通信对提示做出预期反应的能力。内容分析用于描述参与者对使用SBAR患者-HCP沟通模拟的可接受性的观点。
SBARIRR范围为64％至94％，72％至94％的响应被评估为使用预期的SBAR组件。确定的主要主题是（1）患者与提供者的交流和互动；（2）患者希望被听到和被相信；（3）ED体验的准确性并纳入每个患者的独特性；（4）视频培训师的整体实用性。
这项初步研究支持了基于网络的干预在训练患有SCD的成年人中使用SBAR来增强患者与HCP的沟通的有效性和可接受性。加强沟通可以减轻SCD患者在寻求护理期间遇到的障碍并改善结果。需要进行更大样本的其他研究。
