关键词: autism delayed discharge learning disabilities long-stay hospital transforming care

Mesh : Humans Patient Discharge Autistic Disorder Learning Disabilities / epidemiology Hospitals United Kingdom

来  源:   DOI:10.1111/hsc.13964

Abstract:
Despite longstanding efforts at de-institutionalisation, around 2000 people with learning disabilities and/or autistic people in England currently live in hospital settings, amidst reports of protracted stays, limited progress towards living more ordinary lives and scandals of abuse and poor care. Yet, there is relatively little research on why people with learning disabilities and/or autistic people are delayed in hospitals, and what exists has significant limitations. In particular, previous studies have rarely talked directly to people with learning disabilities and/or autistic people, their families and frontline staff about their experiences of living or working in such settings, the barriers to discharge and what would help more people to lead chosen lifestyles. This paper presents the findings of a structured literature review conducted between January and March 2021 on delayed discharges of people with learning disabilities in long-stay hospital settings. It investigated: the proportion of people with learning disabilities delayed in long-stay hospital settings, the suggested reasons for these delays and the proposed solutions. The literature reported delays for 11%-80% of inpatients in different settings. The reasons reported are related either to particular characteristics of the person (which we find problematic) or limitations of the system supporting them. However, delays were defined and reported inconsistently, reasons usually lacked depth and detail, and the majority of included studies did not engage directly with the people living in long-stay settings, their families or frontline staff. Without listening to these voices, genuine solutions will be difficult to find.
摘要:
尽管长期努力去制度化,英国大约有2000名学习障碍和/或自闭症患者目前住在医院,在长期逗留的报道中,在过上更普通的生活以及虐待和护理不善的丑闻方面进展有限。然而,关于为什么有学习障碍和/或自闭症患者在医院被推迟的研究相对较少,存在的东西有很大的局限性。特别是,以前的研究很少直接与学习障碍和/或自闭症患者交谈,他们的家人和前线工作人员了解他们在这种环境中生活或工作的经历,放电的障碍,以及什么可以帮助更多的人过上选择的生活方式。本文介绍了2021年1月至3月之间进行的结构化文献综述的结果,该文献涉及长期住院的学习障碍者的延迟出院。它调查了:长期住院的学习障碍者的比例,这些延误的建议原因和建议的解决方案。文献报道了不同环境下11%-80%的住院患者的延误。报告的原因与人的特定特征(我们发现有问题)或支持他们的系统的局限性有关。然而,延迟被定义和报告不一致,原因通常缺乏深度和细节,大多数纳入的研究并没有直接与长期居住环境中的人接触,他们的家人或前线员工。不听这些声音,真正的解决方案将很难找到。
公众号