PDF(Pubmed)
Abstract：
UNASSIGNED: The treatment and long term clinical outcomes of anorectal malformations (ARM) in children have always been the focus of pediatric surgeons. This study aimed at reporting our experience as far as long-term follow-up of ARM in children is concern.
UNASSIGNED: We enrolled patients treated between 1999 and 2019, and established selection criteria to choose appropriate subjects. A validated questionnaire was used to determine long-term quality of life outcomes.
UNASSIGNED: Out of a total of 48 patients treated within the study period, 28 were enrolled in this study. Among the latter, more than 35% had at least one long-time complication, and more than 90% had a good lifestyle. Urinary and fecal continence was achieved in more than 95% of the patients using medical devices.
UNASSIGNED: This study aimed to bring up new concepts; taking into consideration all aspects of life in patients with ARM, from school life to sexuality, while evaluating fecal and urinary continence. This is essential for the improvement of the skills of the different specialists involved in the management of these patients, and for the implementation of strategies that can improve postoperative function. Most especially, it will also help improve communication between doctors to ensure an adequate transition of these children into adult life.
UNASSIGNED: We enrolled patients treated between 1999 and 2019, and established selection criteria to choose appropriate subjects. A validated questionnaire was used to determine long-term quality of life outcomes.
UNASSIGNED: Out of a total of 48 patients treated within the study period, 28 were enrolled in this study. Among the latter, more than 35% had at least one long-time complication, and more than 90% had a good lifestyle. Urinary and fecal continence was achieved in more than 95% of the patients using medical devices.
UNASSIGNED: This study aimed to bring up new concepts; taking into consideration all aspects of life in patients with ARM, from school life to sexuality, while evaluating fecal and urinary continence. This is essential for the improvement of the skills of the different specialists involved in the management of these patients, and for the implementation of strategies that can improve postoperative function. Most especially, it will also help improve communication between doctors to ensure an adequate transition of these children into adult life.
摘要：
■儿童肛门直肠畸形（ARM）的治疗和长期临床结果一直是儿科外科医生关注的焦点。这项研究旨在报告我们在儿童ARM长期随访方面的经验。
■我们招募了1999年至2019年接受治疗的患者，并建立了选择标准以选择合适的受试者。使用经过验证的问卷来确定长期生活质量结果。
■在研究期间接受治疗的48名患者中，28人参加了这项研究。在后者中,超过35%的人至少有一次长期并发症，90%以上的人有良好的生活方式。在使用医疗设备的患者中，超过95％的患者实现了尿失禁和大便失禁。
■这项研究旨在提出新的概念；考虑到ARM患者生活的各个方面，从学校生活到性,同时评估粪便和尿失禁。这对于提高参与这些患者管理的不同专家的技能至关重要，以及实施可以改善术后功能的策略。尤其是,这也将有助于改善医生之间的沟通，以确保这些儿童充分过渡到成人生活。
■我们招募了1999年至2019年接受治疗的患者，并建立了选择标准以选择合适的受试者。使用经过验证的问卷来确定长期生活质量结果。
■在研究期间接受治疗的48名患者中，28人参加了这项研究。在后者中,超过35%的人至少有一次长期并发症，90%以上的人有良好的生活方式。在使用医疗设备的患者中，超过95％的患者实现了尿失禁和大便失禁。
■这项研究旨在提出新的概念；考虑到ARM患者生活的各个方面，从学校生活到性,同时评估粪便和尿失禁。这对于提高参与这些患者管理的不同专家的技能至关重要，以及实施可以改善术后功能的策略。尤其是,这也将有助于改善医生之间的沟通，以确保这些儿童充分过渡到成人生活。
