Abstract：
Supportive measures and training interventions can improve the care of people with dementia and reduce the burden on informal caregivers, whose needs remain largely unmet. iSupport is an evidence-based online intervention developed by the World Health Organization to provide support and self-guided education to informal family caregivers of people with dementia. This qualitative study explored barriers and facilitators in the access and use of supportive measures for family caregivers of people with dementia living in Southern Switzerland (Ticino). We conducted five focus groups and explored experiences, beliefs, and attitudes toward seeking help (SH), and used thematic analysis to identify key themes. Participants (N = 13) reported a general reluctance to SH. We identified four main barriers to SH: high level of burden; sense of duty; fear of being misunderstood by others; and difficulty in reaching information. We also identified facilitators of help seeking behaviors and unveiled the need of caregivers to be assisted by a dementia case manager to facilitate access to support resources. Local services and interventions should be adapted to caregivers\' needs and expectations, with the aim of facilitating the acceptance of, access to, and service integration of existing and future support measures, including iSupport.
摘要：
支持性措施和培训干预措施可以改善痴呆症患者的护理，减轻非正式护理人员的负担，他们的需求基本上没有得到满足。iSupport是世界卫生组织开发的基于证据的在线干预措施，旨在为痴呆症患者的非正式家庭照顾者提供支持和自我指导教育。这项定性研究探讨了瑞士南部（提契诺）痴呆症患者的家庭护理人员获得和使用支持性措施的障碍和促进因素。我们进行了五个焦点小组，并探索了经验，信仰,以及对寻求帮助的态度(SH)，并使用主题分析来确定关键主题。参与者（N=13）报告普遍不愿接受SH。我们确定了SH的四个主要障碍：高负担；责任感；害怕被他人误解；以及难以获得信息。我们还确定了寻求帮助行为的促进者，并揭示了护理人员需要由痴呆症病例经理协助，以促进获得支持资源。当地服务和干预措施应适应护理人员的需求和期望，目的是促进人们接受，访问,以及现有和未来支持措施的服务集成，包括iSupport。
