Abstract：
Treatment delay is the best explanation for the development of Korsakoff\'s syndrome. This study aimed to improve the patient pathway to reduce treatment delay and/or increase proper care on time for people with Korsakoff\'s syndrome by generating knowledge about the patient journey from the first moment that professional care was deemed necessary until the time of admission into a specialised residential facility for long-term care and treatment. This retrospective exploratory multiple-case study used an individual semi-structured interview approach in 14 cases, with a total of 56 respondents. Process mapping was used to understand the chronological patient journey and the multiple-case description was analysed by using the same question as used by the individual case studies: \'What risk factors do the respondents discuss that can explain treatment delay?\'. The exploration of the data revealed three reoccurring cross-case risk factors to explain treatment delay or delay in receiving proper care on time. Our respondents discussed: the lack of knowledge of KS, the fragmentation of care/waiting lists and the lack of specialistic home care. We recommend the development of knowledge programmes about Korsakoff\'s syndrome for family carers, GP\'s, healthcare professionals in general hospitals and home care workers, which could play an essential role in reducing treatment delays for patients with KS. There is also a need to find ways to organise coordinated care for patients with KS. Further research into the role of Korsakoff case managers is recommended.
摘要：
治疗延迟是Korsakoff综合征发展的最佳解释。这项研究旨在改善患者的途径，以减少治疗延迟和/或增加对Korsakoff综合征患者的适当护理时间，方法是从被认为需要专业护理的第一时刻到入院时的患者旅程。进入专门的住宿设施进行长期护理和治疗。这项回顾性探索性多案例研究在14例病例中使用了个人半结构化访谈方法，共有56名受访者。使用过程映射来了解按时间顺序排列的患者旅程，并通过使用与单个案例研究相同的问题来分析多病例描述：“受访者讨论的哪些风险因素可以解释治疗延迟？”。对数据的探索揭示了三个重复发生的跨病例风险因素，以解释治疗延迟或按时接受适当护理的延迟。我们的受访者讨论了：缺乏对KS的了解，护理/等待名单的分散和缺乏专业的家庭护理。我们建议为家庭照顾者开发有关Korsakoff综合征的知识计划，GP\'s,综合医院和家庭护理人员的医疗保健专业人员，这可能在减少KS患者的治疗延迟方面发挥重要作用。还需要找到为KS患者组织协调护理的方法。建议进一步研究Korsakoff案例经理的作用。
