METHODS: The predefined questionnaire was delivered on the phone in 2016. The descriptive analysis was applied to the research data. 941 neonates in birth cohorts 2013-2014 who were documented as a bilateral referral in the national UNHS tracking system were targeted. The respondents were either caregivers or family members.
RESULTS: 40.3% of 941 children were lost to follow-up, and 66.24% of 363 children were diagnosed with SNHL. 45.15% of 163 children used hearing amplification device(s). 77.46% of hearing amplification device users and 7.51% of non-users participated in the auditory training courses. By six months of age, 38.51% and 22.58% of children diagnosed with bilateral SNHL commenced the hearing amplification device fitting and the auditory training courses, respectively.
CONCLUSIONS: More efforts are needed to enhance the performance of the UNHS to achieve national goals stated in the 2014 Taiwan UNHS Revised Guidelines and the well-known benchmarks set by the JCIH in 2007. The development of an electronic tracking system for storing and sharing information on the follow-up on children with congenital hearing loss was as significant as the improvements in the understanding of early hearing detection and intervention of the public and stakeholders.
方法:预定义的问卷于2016年通过电话发送。对研究数据进行描述性分析。针对2013-2014年出生队列中的941名新生儿,他们在国家UNHS跟踪系统中被记录为双边转诊。受访者要么是照顾者,要么是家庭成员。
结果:941名儿童中有40.3%失访,363例儿童中66.24%被诊断为SNHL。163名儿童中有45.15%使用听力放大装置。77.46%的听力放大设备用户和7.51%的非用户参加了听觉培训课程。六个月大的时候,诊断为双侧SNHL的儿童中,分别有38.51%和22.58%开始了听力放大装置的装配和听觉训练课程,分别。
结论:需要做出更多努力来提高UNHS的绩效,以实现2014年台湾UNHS修订指南和JCIH在2007年设定的众所周知的基准中所述的国家目标。开发电子跟踪系统以存储和共享有关先天性听力损失儿童后续行动的信息,与改善公众和利益相关者对早期听力检测和干预的理解一样重要。