IBM-FRS was administered over the phone within two weeks of their most recent IBM-PIC entry in the IBMR to 35 participants. To compare the agreement between IBM-FRS and IBM-PIC scores, Interrater Correlation Coefficient (ICC) analysis was performed. For individual questions, Fleiss Kappa statistics was used.
Thirty-five active IBM-PIC users participated. Eighty percent of the participants were men, and 91% were White Caucasians. The reported IBM-FRS score of this group was 23.5 ± 7.4 (range 1-38). The Interrater Correlation Coefficient (ICC) between the physician-administered IBM-FRS score and the IBM-PIC was 0.98 (0.96-0.99). There was moderate to substantial agreement on all the questions on IBM-FRS except for handwriting and fine motor skills.
IBM-PIC is a reliable indicator of the IBM-FRS score obtained by the physician. It is anticipated that this online platform will be a valuable tool for assessing IBM severity and monitoring disease progression remotely both in clinical practice and research studies.
IBM-FRS在最近一次IBM-PIC进入IBMR的两周内通过电话给35名参与者。要比较IBM-FRS和IBM-PIC分数之间的协议,进行评分者间相关系数(ICC)分析。对于个别问题,使用了FleissKappa统计数据。
35名活跃的IBM-PIC用户参加了会议。80%的参与者是男性,91%是白人白种人。该组报告的IBM-FRS评分为23.5±7.4(范围1-38)。医师管理的IBM-FRS评分与IBM-PIC之间的评分者间相关系数(ICC)为0.98(0.96-0.99)。除了手写和精细运动技能外,在IBM-FRS的所有问题上都达成了中等到实质性的共识。
IBM-PIC是医师获得的IBM-FRS评分的可靠指标。预计该在线平台将是在临床实践和研究中评估IBM严重程度和远程监测疾病进展的有价值的工具。