Abstract：
OBJECTIVE: To investigate patients\' experiences of the assessment of support garments in relation to a parastomal bulge.
METHODS: We conducted a qualitative study with semi-structured interviews preceded by field observations. The 11 in-dept interviews were analysed using interpretative phenomenological analysis.
RESULTS: In the assessment process patients lacked information from professionals on the advantages, disadvantages as well as criteria for choosing between garments.Garments had to fit patients\' needs and personal preferences; being comfortable, flexible and user-friendly. The garment created new possibilities and challenges; well-assessed garments reduced symptoms while poorly assessed worsened or induced symptoms and ended up unworn. When comorbidities were not accounted for, garments were unmanageable to patients. Patients needed guidance on how to apply and use the garment. Lack of hands-on-guidance left patients confused and helpless with unworn garments. Re-assessment of a garment before it could be worn was time consuming, stressful and required patients\' physical and mental resources.
CONCLUSIONS: Exploring patients\' expectations, symptoms, needs and comorbidity was vital for patients\' subsequent use and benefit of garments. Tailor-made information, hands-on-guidance and professional assistance are important in the assessment process. Interventions to support a patient centred, individual and systematic approach is warranted.
METHODS: We conducted a qualitative study with semi-structured interviews preceded by field observations. The 11 in-dept interviews were analysed using interpretative phenomenological analysis.
RESULTS: In the assessment process patients lacked information from professionals on the advantages, disadvantages as well as criteria for choosing between garments.Garments had to fit patients\' needs and personal preferences; being comfortable, flexible and user-friendly. The garment created new possibilities and challenges; well-assessed garments reduced symptoms while poorly assessed worsened or induced symptoms and ended up unworn. When comorbidities were not accounted for, garments were unmanageable to patients. Patients needed guidance on how to apply and use the garment. Lack of hands-on-guidance left patients confused and helpless with unworn garments. Re-assessment of a garment before it could be worn was time consuming, stressful and required patients\' physical and mental resources.
CONCLUSIONS: Exploring patients\' expectations, symptoms, needs and comorbidity was vital for patients\' subsequent use and benefit of garments. Tailor-made information, hands-on-guidance and professional assistance are important in the assessment process. Interventions to support a patient centred, individual and systematic approach is warranted.
摘要：
目的：调查患者评估造口旁隆起支撑服装的经验。
方法：我们进行了一项定性研究，在进行实地观察之前进行了半结构化访谈。使用解释现象学分析对这11次访谈进行了分析。
结果：在评估过程中，患者缺乏专业人员关于优势的信息，缺点以及在服装之间选择的标准。服装必须符合患者的需求和个人喜好；舒适，灵活和用户友好。服装创造了新的可能性和挑战；经过良好评估的服装减轻了症状，而评估不佳的服装则恶化或诱发了症状，最终无法穿。当不考虑合并症时，服装对病人来说是难以管理的。患者需要有关如何应用和使用服装的指导。缺乏动手指导使患者对未穿的衣服感到困惑和无助。在服装可以穿之前重新评估是耗时的，压力大，需要患者的身心资源。
结论：探索患者的期望，症状,需求和合并症对于患者随后使用和受益的服装至关重要。量身定制的信息，实践指导和专业援助在评估过程中很重要。以患者为中心支持的干预措施，个人和系统的方法是有必要的。
方法：我们进行了一项定性研究，在进行实地观察之前进行了半结构化访谈。使用解释现象学分析对这11次访谈进行了分析。
结果：在评估过程中，患者缺乏专业人员关于优势的信息，缺点以及在服装之间选择的标准。服装必须符合患者的需求和个人喜好；舒适，灵活和用户友好。服装创造了新的可能性和挑战；经过良好评估的服装减轻了症状，而评估不佳的服装则恶化或诱发了症状，最终无法穿。当不考虑合并症时，服装对病人来说是难以管理的。患者需要有关如何应用和使用服装的指导。缺乏动手指导使患者对未穿的衣服感到困惑和无助。在服装可以穿之前重新评估是耗时的，压力大，需要患者的身心资源。
结论：探索患者的期望，症状,需求和合并症对于患者随后使用和受益的服装至关重要。量身定制的信息，实践指导和专业援助在评估过程中很重要。以患者为中心支持的干预措施，个人和系统的方法是有必要的。
