PDF(Pubmed)
Abstract：
BACKGROUND: The COVID-19 pandemic\'s emergence necessitated that clinic/hospital-based rehabilitation is replaced or substituted by other modes. Using telecommunication devices was found a convenient alternative.
OBJECTIVE: Present study explored the telerehabilitation experiences of the parents of children with developmental disabilities (CDD).
METHODS: The study was conducted among the service users of a not-for-profit NGO located in Kerala. Parents of children with one or more developmental disabilities formed the population of the present study. The present study was a cross-sectional exploratory survey.
METHODS: A total of 205 parents took part in the study using a brief open-ended survey. The majority of the participants were females (65%).
METHODS: The sociodemographic data were analyzed using frequency and percentage. The qualitative data were analyzed using thematic analysis.
RESULTS: Overall, the study found that parents experienced more challenges in telerehabilitation compared to face-to-face interventions. Perceived challenges included externalizing problems, reduced effectiveness, logistical issues, multiple disabilities, and the child\'s lack of interest in gadgets. Perceived advantages included the child\'s liking for the device and increased availability of time.
CONCLUSIONS: In short, the study throws light on the various challenges experienced by parents in implementing telerehabilitation for their CDD. The findings strongly recommend fine-tuning telerehabilitation programs to meet these challenges to provide optimal care to our children with special needs.
OBJECTIVE: Present study explored the telerehabilitation experiences of the parents of children with developmental disabilities (CDD).
METHODS: The study was conducted among the service users of a not-for-profit NGO located in Kerala. Parents of children with one or more developmental disabilities formed the population of the present study. The present study was a cross-sectional exploratory survey.
METHODS: A total of 205 parents took part in the study using a brief open-ended survey. The majority of the participants were females (65%).
METHODS: The sociodemographic data were analyzed using frequency and percentage. The qualitative data were analyzed using thematic analysis.
RESULTS: Overall, the study found that parents experienced more challenges in telerehabilitation compared to face-to-face interventions. Perceived challenges included externalizing problems, reduced effectiveness, logistical issues, multiple disabilities, and the child\'s lack of interest in gadgets. Perceived advantages included the child\'s liking for the device and increased availability of time.
CONCLUSIONS: In short, the study throws light on the various challenges experienced by parents in implementing telerehabilitation for their CDD. The findings strongly recommend fine-tuning telerehabilitation programs to meet these challenges to provide optimal care to our children with special needs.
摘要：
背景：COVID-19大流行的出现需要以诊所/医院为基础的康复被其他模式取代或替代。使用电信设备是一种方便的替代方法。
目的：本研究探讨了发育障碍（CDD）儿童父母的远程康复体验。
方法：这项研究是在喀拉拉邦一家非营利性非政府组织的服务用户中进行的。患有一种或多种发育障碍的儿童的父母构成了本研究的人群。本研究是一项横断面探索性调查。
方法：共有205名父母参加了这项研究，使用了一个简短的开放式调查。大多数参与者是女性（65%）。
方法：使用频率和百分比分析社会人口统计学数据。定性数据采用专题分析法进行分析。
结果：总体而言，研究发现,与面对面干预相比,家长在远程康复方面遇到的挑战更多.感知到的挑战包括外部化问题，降低效力，后勤问题,多重残疾,和孩子对小工具缺乏兴趣。感知到的优势包括孩子对设备的喜好和时间的增加。
结论：简而言之，这项研究揭示了父母在为CDD实施远程康复治疗时遇到的各种挑战。调查结果强烈建议微调远程康复计划，以应对这些挑战，为有特殊需要的儿童提供最佳护理。
目的：本研究探讨了发育障碍（CDD）儿童父母的远程康复体验。
方法：这项研究是在喀拉拉邦一家非营利性非政府组织的服务用户中进行的。患有一种或多种发育障碍的儿童的父母构成了本研究的人群。本研究是一项横断面探索性调查。
方法：共有205名父母参加了这项研究，使用了一个简短的开放式调查。大多数参与者是女性（65%）。
方法：使用频率和百分比分析社会人口统计学数据。定性数据采用专题分析法进行分析。
结果：总体而言，研究发现,与面对面干预相比,家长在远程康复方面遇到的挑战更多.感知到的挑战包括外部化问题，降低效力，后勤问题,多重残疾,和孩子对小工具缺乏兴趣。感知到的优势包括孩子对设备的喜好和时间的增加。
结论：简而言之，这项研究揭示了父母在为CDD实施远程康复治疗时遇到的各种挑战。调查结果强烈建议微调远程康复计划，以应对这些挑战，为有特殊需要的儿童提供最佳护理。
