关键词: Chronic diseases Digital health Electronic patient-reported outcomes Outcome assessment PROs Patient-reported outcomes Quality of life Symptom monitoring ePROM systems ePROs

来  源:   DOI:10.1177/20406223211015958   PDF(Sci-hub)   PDF(Pubmed)

Abstract:
An application of telemedicine of growing interest and relevance is the use of personal computers and mobile devices to collect patient-reported outcomes (PROs). PROs are self-reports of patients\' health status without interpretation by anyone else. The tools developed to assess PROs are known as patient-reported outcomes measures (PROMs). The technological innovations that have led to an increased ownership of electronic devices have also facilitated the development of electronic PROMs (ePROMs). ePROMs are a conduit for telemedicine in the care of patients with chronic diseases. Various studies have demonstrated that the use of ePROMs in routine clinical practice is both acceptable and feasible with patients increasingly expressing a preference for an electronic mode of administration. There is increasing evidence that the use of electronic patient-reported outcome (ePROMs) could have significant impacts on outcomes valued by patients, healthcare providers and researchers. Whilst the development and implementation of these systems may be initially costly and resource-intensive, patient preferences and existing evidence to support their implementation suggests the need for continued research prioritisation in this area. This narrative review summarises and discusses evidence of the impact of ePROMs on clinical parameters and outcomes relevant to chronic diseases. We also explore recently published literature regarding issues that may influence the robust implementation of ePROMs for routine clinical practice.
摘要:
越来越感兴趣和相关性的远程医疗应用是使用个人计算机和移动设备来收集患者报告的结果(PRO)。PROs是患者健康状况的自我报告,没有其他人的解释。为评估PRO而开发的工具被称为患者报告结果测量(PROMs)。导致电子设备所有权增加的技术创新也促进了电子PROM(ePROM)的发展。ePROM是远程医疗在慢性病患者护理中的管道。各种研究已经证明,在常规临床实践中使用ePR0M既是可接受的又是可行的,患者越来越多地表达对电子给药模式的偏好。越来越多的证据表明,使用电子患者报告结果(ePROM)可能会对患者评估的结果产生重大影响。医疗保健提供者和研究人员。虽然这些系统的开发和实施最初可能成本高昂且资源密集,患者的偏好和支持其实施的现有证据表明,需要在该领域继续优先进行研究.这篇叙述性综述总结并讨论了ePROMs对与慢性疾病相关的临床参数和结果的影响的证据。我们还探讨了最近发表的有关可能影响ePROM在常规临床实践中的稳健实施的问题的文献。
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