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Abstract：
Cancer patients incur high care costs; however, there is a paucity of literature characterizing unmet financial obligations for patients with urologic cancers. Kidney cancer patients are particularly burdened by costs associated with novel systemic treatments. This study aimed to ascertain the characteristics of GoFundMe® crowdfunding campaigns for patients with kidney cancer, in order to better understand the financial needs of this population.
We performed a cross-sectional, quantitative, and qualitative analysis of all kidney cancer GoFundMe® campaigns since 2010. Fundraising metrics such as goal funds and amount raised, were extracted. Eight independent investigators collected patient, disease and campaign-level variables from campaign stories (κ = 0.72). In addition, we performed a content analysis of campaign narratives spotlighting the primary appeal of the patient\'s life story.
A total of 486 GoFundMe® kidney cancer campaigns were reviewed. The median goal funds were 10,000USD [IQR = 5000, 20,000] and the median amount raised was 1450USD [IQR = 578, 4050]. Most campaigns were for adult males (53%) and 62% of adults had children. A minority were for pediatric patients (17%). Thirty-seven percent of adult patients were primary wage earners and 43% reported losing their job or substantially reducing hours due to illness. Twenty-nine percent reported no insurance or insufficient coverage. Campaigns most frequently sought funds for medical bills (60%), nonmedical bills (27%), and medical travel (23%). Qualitative campaign narratives mostly emphasized patients\' hardship (46.3%) or high moral character (35.2%). Only 8% of campaigns achieved their target funds.
Despite fundraising efforts, patients with kidney cancer face persistent financial barriers, incurring both medical and nonmedical cost burdens. This may be compounded by limited or no insurance. Cancer care providers should be aware of financial constraints placed on kidney cancer patients, and consider how these may impact treatment regimens.
We performed a cross-sectional, quantitative, and qualitative analysis of all kidney cancer GoFundMe® campaigns since 2010. Fundraising metrics such as goal funds and amount raised, were extracted. Eight independent investigators collected patient, disease and campaign-level variables from campaign stories (κ = 0.72). In addition, we performed a content analysis of campaign narratives spotlighting the primary appeal of the patient\'s life story.
A total of 486 GoFundMe® kidney cancer campaigns were reviewed. The median goal funds were 10,000USD [IQR = 5000, 20,000] and the median amount raised was 1450USD [IQR = 578, 4050]. Most campaigns were for adult males (53%) and 62% of adults had children. A minority were for pediatric patients (17%). Thirty-seven percent of adult patients were primary wage earners and 43% reported losing their job or substantially reducing hours due to illness. Twenty-nine percent reported no insurance or insufficient coverage. Campaigns most frequently sought funds for medical bills (60%), nonmedical bills (27%), and medical travel (23%). Qualitative campaign narratives mostly emphasized patients\' hardship (46.3%) or high moral character (35.2%). Only 8% of campaigns achieved their target funds.
Despite fundraising efforts, patients with kidney cancer face persistent financial barriers, incurring both medical and nonmedical cost burdens. This may be compounded by limited or no insurance. Cancer care providers should be aware of financial constraints placed on kidney cancer patients, and consider how these may impact treatment regimens.
摘要：
癌症患者的护理费用很高；然而，缺乏描述泌尿系癌症患者未履行财务义务的文献。肾癌患者尤其受到与新型系统治疗相关的成本的负担。这项研究旨在确定GoFundMe®针对肾癌患者的众筹活动的特征，为了更好地了解这些人口的经济需求。
我们做了一个横截面,定量,以及自2010年以来所有肾癌GoFundMe®活动的定性分析。目标资金和募集金额等筹资指标，被提取。八名独立调查人员收集了病人，来自竞选故事的疾病和竞选级别变量(κ=0.72)。此外,我们对运动叙事进行了内容分析，突出了患者生活故事的主要吸引力。
共审查了486个GoFundMe®肾癌运动。目标基金的中位数为10,000美元[IQR=5000,20,000]，筹集的中位数为1450美元[IQR=578,4050]。大多数运动是针对成年男性（53％），而62％的成年人有孩子。少数为儿科患者（17％）。37％的成年患者是主要的工薪阶层，而43％的人报告说由于疾病而失去了工作或大大减少了工作时间。29％的人报告没有保险或保险范围不足。运动最常寻求医疗费用的资金（60％），非医疗账单(27%)，和医疗旅行(23%)。定性运动叙事大多强调患者的艰苦（46.3％）或高品德（35.2％）。只有8％的广告系列达到目标资金。
尽管筹款努力,肾癌患者面临持续的经济障碍，同时承担医疗和非医疗费用负担。这可能因有限或没有保险而加重。癌症护理提供者应该意识到对肾癌患者的财政限制，并考虑这些可能如何影响治疗方案。
我们做了一个横截面,定量,以及自2010年以来所有肾癌GoFundMe®活动的定性分析。目标资金和募集金额等筹资指标，被提取。八名独立调查人员收集了病人，来自竞选故事的疾病和竞选级别变量(κ=0.72)。此外,我们对运动叙事进行了内容分析，突出了患者生活故事的主要吸引力。
共审查了486个GoFundMe®肾癌运动。目标基金的中位数为10,000美元[IQR=5000,20,000]，筹集的中位数为1450美元[IQR=578,4050]。大多数运动是针对成年男性（53％），而62％的成年人有孩子。少数为儿科患者（17％）。37％的成年患者是主要的工薪阶层，而43％的人报告说由于疾病而失去了工作或大大减少了工作时间。29％的人报告没有保险或保险范围不足。运动最常寻求医疗费用的资金（60％），非医疗账单(27%)，和医疗旅行(23%)。定性运动叙事大多强调患者的艰苦（46.3％）或高品德（35.2％）。只有8％的广告系列达到目标资金。
尽管筹款努力,肾癌患者面临持续的经济障碍，同时承担医疗和非医疗费用负担。这可能因有限或没有保险而加重。癌症护理提供者应该意识到对肾癌患者的财政限制，并考虑这些可能如何影响治疗方案。
