METHODS: We analyzed 114 consecutive patients (62.6±8 years old, 70.2% males) with HCM. Variables related to optimal management of HCM patients and their family study were recorded, as well as guidance on the risk of sudden death. We analyzed whether patients were assessed by the ICDU or at a general cardiology consultation (GCC).
RESULTS: 50 patients were assessed in the IDCU and 64 in the GCC. Familial screening was more frequent in patients assessed by the IDCU (45.3% vs. 4%; p<0.01), requesting more genetic studies of the index case (70.3% vs. 14%; p<0.01) and cardiac magnetic resonance (53.1% vs. 18%; p<0.01). Sudden death risk score was performed more frequently in patients after the creation of an IDCU (67.2% vs. 28%; p<0.01). Treatment with beta-blockers was similar in both groups (72% vs. 78.1%; p=0.24). An implantable cardiac defibrillator was indicated similarly in both groups (12.5% in ICDU and 6% in GC; p=0.24).
CONCLUSIONS: The implementation of an IDCU improved the quality of the medical care for HCM patients by performing a better study of the patients and their families.
方法:我们分析了114例连续患者(62.6±8岁,70.2%的男性)患有HCM。记录与HCM患者及其家庭研究的最佳管理相关的变量,以及猝死风险的指导。我们分析了患者是否通过ICDU或一般心脏病学会诊(GCC)进行评估。
结果:在IDCU中评估了50例患者,在GCC中评估了64例患者。在IDCU评估的患者中,家族性筛查更为频繁(45.3%vs.4%;p<0.01),要求对索引病例进行更多的遗传研究(70.3%与14%;p<0.01)和心脏磁共振(53.1%vs.18%;p<0.01)。在创建IDCU后,患者更频繁地进行猝死风险评分(67.2%vs.28%;p<0.01)。两组的β受体阻滞剂治疗相似(72%vs.78.1%;p=0.24)。两组患者均采用植入式心脏除颤器(ICDU为12.5%,GC为6%;p=0.24)。
结论:通过对患者及其家属进行更好的研究,IDCU的实施提高了HCM患者的医疗质量。