PDF(Pubmed)
Abstract：
Online patient communities are becoming more prevalent as a resource to help patients take control of their health. However, online patient communities experience challenges that require active moderation.
This study aimed to identify the challenges of sustaining a thriving online patient community and the moderation practices employed to address the challenges and manage the online patient community successfully.
An inductive case study of Mayo Clinic Connect was analyzed using the grounded theory methodology. Insights for the analysis were obtained from semistructured interviews with community managers and community members. Secondary data sources, such as community management documents, observational meeting notes, and community postings, were used to validate and triangulate the findings.
We identified four challenges unique to online patient communities. These challenges include passion, nonmedical advice, personal information, and community participation. We identified five categories of practices that community members used to address these challenges and moderate the community successfully. These practices include instructive, semantic, connective, administrative, and policing practices.
Successful moderation in online patient communities requires a multitude of practices to manage the challenges that arise in these communities. Some practices are implemented as preventive measures while other practices are more interventive. Additionally, practices can come from both authority figures and exemplary members.
This study aimed to identify the challenges of sustaining a thriving online patient community and the moderation practices employed to address the challenges and manage the online patient community successfully.
An inductive case study of Mayo Clinic Connect was analyzed using the grounded theory methodology. Insights for the analysis were obtained from semistructured interviews with community managers and community members. Secondary data sources, such as community management documents, observational meeting notes, and community postings, were used to validate and triangulate the findings.
We identified four challenges unique to online patient communities. These challenges include passion, nonmedical advice, personal information, and community participation. We identified five categories of practices that community members used to address these challenges and moderate the community successfully. These practices include instructive, semantic, connective, administrative, and policing practices.
Successful moderation in online patient communities requires a multitude of practices to manage the challenges that arise in these communities. Some practices are implemented as preventive measures while other practices are more interventive. Additionally, practices can come from both authority figures and exemplary members.
摘要：
在线患者社区作为帮助患者控制健康的资源正变得越来越普遍。然而,在线患者社区经历的挑战需要积极的调节。
这项研究旨在确定维持蓬勃发展的在线患者社区所面临的挑战，以及用于应对挑战和成功管理在线患者社区的适度实践。
使用扎根理论方法分析了梅奥诊所连接的归纳案例研究。分析的见解是从与社区经理和社区成员的半结构化访谈中获得的。辅助数据源,如社区管理文件，观察会议记录，和社区帖子，用于验证和三角测量结果。
我们确定了在线患者社区特有的四个挑战。这些挑战包括激情，非医学建议,个人信息,和社区参与。我们确定了社区成员用来应对这些挑战并成功调节社区的五类做法。这些做法包括指导性的，语义，结缔组织，行政,和警务实践。
在线患者社区的成功调节需要多种实践来管理这些社区中出现的挑战。有些做法是作为预防措施实施的，而另一些做法则更具干预性。此外,实践可以来自权威人物和模范成员。
这项研究旨在确定维持蓬勃发展的在线患者社区所面临的挑战，以及用于应对挑战和成功管理在线患者社区的适度实践。
使用扎根理论方法分析了梅奥诊所连接的归纳案例研究。分析的见解是从与社区经理和社区成员的半结构化访谈中获得的。辅助数据源,如社区管理文件，观察会议记录，和社区帖子，用于验证和三角测量结果。
我们确定了在线患者社区特有的四个挑战。这些挑战包括激情，非医学建议,个人信息,和社区参与。我们确定了社区成员用来应对这些挑战并成功调节社区的五类做法。这些做法包括指导性的，语义，结缔组织，行政,和警务实践。
在线患者社区的成功调节需要多种实践来管理这些社区中出现的挑战。有些做法是作为预防措施实施的，而另一些做法则更具干预性。此外,实践可以来自权威人物和模范成员。
