关键词: adolescents children dreams end of life end-of-life dreams and visions end-of-life experiences hospice palliative care pediatric

Mesh : Adolescent Adult Death Dreams / psychology Female Glioblastoma / mortality Hospice Care / psychology Humans Palliative Care Terminal Care Terminally Ill / psychology

来  源:   DOI:10.1089/jpm.2019.0547   PDF(Sci-hub)

Abstract:
Background: End-of-life dreams and visions (ELDVs) are a recognized phenomenon that can occur as part of the normal dying process. Data suggest that ELDVs can provide comfort, foster discussion of waking life concerns, and lessen the fear of death. Current literature on ELDVs focuses on the prevalence, content, and effects of ELDVs exclusively in adult populations. Methods: We present the case of a 15-year-old girl with terminal glioblastoma who was enrolled in a pediatric palliative care program and later in hospice care. During her end-of-life trajectory, the patient experienced two distinct ELDV experiences, from which she recalled vivid details regarding the setting, characters, and content. These ELDV experiences afforded comfort and meaning to the patient and her family through her end-of-life trajectory as well as provided relief for her grieving family. Conclusion: In the case presented, ELDVs appear to show similar characteristics and impact in the adolescent population as described in the previous literature examining adult ELDVs. In addition, this case demonstrates the potential benefits of ELDV awareness for the bereaved. Clinicians working with pediatric and adolescent end-of-life populations should take note of the potential for ELDVs and the impact they can have on both patients and families.
摘要:
背景:生命终结的梦想和愿景(ELDVs)是一种公认的现象,可以作为正常死亡过程的一部分发生。数据表明,ELDVs可以提供舒适,促进对清醒生活问题的讨论,减少对死亡的恐惧。目前关于ELDVs的文献集中在患病率上,内容,和ELDVs仅在成人人群中的影响。方法:我们介绍了一个患有晚期胶质母细胞瘤的15岁女孩的病例,该女孩参加了儿科姑息治疗计划,后来又参加了临终关怀治疗。在她生命终结的轨迹中,患者经历了两种不同的ELDV经历,从中她回忆起有关设置的生动细节,字符,和内容。这些ELDV经历为患者和她的家人提供了安慰和意义,通过她的生命终结轨迹,并为她悲伤的家庭提供了救济。结论:在所介绍的案例中,ELDV似乎在青少年人群中表现出相似的特征和影响,如先前研究成人ELDV的文献所述。此外,该病例证明了ELDV意识对丧亲者的潜在益处.与儿科和青少年临终人群合作的临床医生应注意ELDV的潜力及其对患者和家庭的影响。
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