关键词: Down’s syndrome health maintenance health surveillance trisomy 21

Mesh : Adolescent Child Child, Hospitalized Comorbidity Down Syndrome / diagnosis therapy Echocardiography Eye Diseases / diagnosis therapy Female Guideline Adherence / statistics & numerical data Heart Defects, Congenital / diagnosis therapy Hospitals Hospitals, Pediatric Humans Jamaica Male Practice Guidelines as Topic Retrospective Studies

来  源:   DOI:10.1177/0049475518788468

Abstract:
Health surveillance of children with Down\'s syndrome may be inadequate. We aimed to assess adherence to health management guidelines at the main paediatric hospital in Jamaica. Ours was a retrospective descriptive study over a five-year period. Data on demographics, co-morbidities, investigations, referrals and interventions were recorded. Of 41 children included in the study, 85% were diagnosed in the neonatal period. Congenital heart disease in 29 (76%) and ophthalmological disorders in 13/24 (54%) were the most common co-morbidities. Evaluations in accordance with the American Academy of Pediatrics guidelines were carried out in only 46% of the children for echocardiography, 48% for ophthalmology, 30% for hearing evaluation and 10% for neonatal thyroid screening. Thus, the recommended guidelines were not carried out in a timely manner in the majority of the children. Education of healthcare providers and caregivers along with the provision of adequate resources may help to resolve this inadequacy.
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